So far, so good. One of the discoveries was that rice cereal is not an effective thickener - it tends to clump, so you have water-y parts and thick parts. Instead, we're now using something called Thick-It, which does the job in an even (and expensive, of course) manner. Using the thickener did not entirely stop the choking/gagging, but it did seem to minimize it.
By Friday night, we were both exhausted and hoping that Collin would sleep more comfortably. Well, Collin & Daddy (that's me) took that into their own hands around 3 am. I was getting ready to change a poopy diaper when I picked Collin up and moved him the length of the crib. His NG tube (still in under doctor's orders - "in case we need it again") caught on the blanket and the tape ripped off his face. I hit the nurse's call button as Collin began sneezing up his feeding tube inch-by-inch. By the time the nurse got there, she decided to pull the tube... and there was only a 1/2 inch left in his nose. (I really liked the night nurse - she confided that she'd wanted to pull the tube earlier!) With the tube, he began to take it easier... as would I, if you took a long yellow tube out of my body!
Saturday morning, we puttered around, wondering what came next. The attending physician came in and asked me if we wanted to go home - the answer, of course, was YES. Then began the Dance Of Discharge, which is only slightly shorter than the 30 Years War.
And since nothing is that easy - a doctor came in to "observe" Collin feed (as Shari requested) and left after a minute, since nothing was going wrong. Not 30 seconds after she left, Collin began gagging. We got into a long & not terribly productive discussion with our nurse, another nurse who was an "expert" on lactation, and the doctor. In short, the conversation proved that
- some doctors don't listen very well
- some doctors need etiquette courses (dismissing Shari's request with "we don't have time for that" being the most clear example)
- some doctors need to be careful about giving advice so freely when they've only glanced at the chart
We still went home - which we wanted, as it didn't seem like further discussion with the weekend staff was going to do anything. After renting a Medala pump and dealing with the pharmacy, we finally arrived home at 3 in the afternoon.
Well, it's 3 pm Sunday afternoon, and Collin is doing much better when we get the consistency of the feeds right. (For the record, what we're attempting to do flows like thick Malt-O-Meal.) Shari's getting some much needed sleep, and I'm back at the church, getting ready for two meetings & a missions study.)
Thanks for all who've been praying for us. Please don't stop now. :-)